HLHS AWARENESS UK

Hypoplastic Left Heart Syndrome (HLHS) is a Congenital Heart Disease (or Congenital Heart Defect as it is known in America) is the number one killer in babies and children; it is more fatal than cancer. As there is still no national awareness in the UK, the majority of people do not seem to know a lot about Congenital Heart Disease (CHD).

Everyone is welcome here, people from all around the world, people who are not even affected by CHD please do read through and educate yourselves on CHDs.

Be heart aware and let’s spread the word!!

"One heart one mind countless voices".

A CHD is an anomaly of the heart that is present at birth.

CHD’s cause one or more portions of the heart to develop abnormally.

There are at least 35 distinct forms of CHD’s recognized.

There is no known cause for CHD, although genetics is the number one suspect.

CHD is the # 1 birth defect and is the leading cause of birth-defect related deaths… While it is the most common birth defect, it is also the least publicized.

CHD’s strikes children without regard to economic level, ethnic origin, sex, geographic location or religious beliefs.

Approx. 16,000 infants are born with CHD each year in the UK and still, newborns are not screened for CHD’s.

Some babies may be diagnosed before birth or at birth, some not until days, weeks, months or even years later.

Sadly, too many are not diagnosed until after death.

Undiagnosed CHD’s and Childhood Onset Heart Disease cause many cases of Sudden Cardiac Death in young athletes.

Despite these statistics, teen-aged athletes are not routinely screened for CHD’s.

There are 1.2 million children and adults with CHD’s alive today.

CHD affects not only patients, but also entire families.

Meet a HLHS Warrior - Tristian... 

TRISTANS JOURNEY

 

 

 

 

 

DISCLAIMER: We are not medical personnel and do not intend to take away from your physician’s advice. Individual evaluation by an experienced paediatric or adult congenital cardiologist and cardiac surgeon is needed to determine proper diagnosis and the best course of treatment. We are only here to help raise awareness, educate and inform through personal life experiences. We do not hold any responsibility for any actions taken by reading this website.

 

 

 

 

 

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